All in the mind? Please help!
Moderator: Peak Moderation
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vtsnowedin
- Posts: 6595
- Joined: 07 Jan 2011, 22:14
- Location: New England ,Chelsea Vermont
Best of luck fighting this Keela. A decade or so ago my beloved wife was diagnosed with Fibromyalgia which seemed to be the catch all disease of the time. If they couldn't find anything else wrong with you that's what you had. Half the people you dealt with thought it was all in her head and the other half had no effective treatment to offer. She still takes pain killers to sleep at night.
Cheers! There are a load of misconceptions about this illness out there. Many of them perpetrated by the psychiatrists who pushed in and claimed ME as a psychiatric condition. They where supposed to be helping..... but instead blocked real research into the physiology of the illness.
Just this morning a work colleague told me I needed to push myself more in order to get well - because this is what she does on a daily basis. She has health issues too and I don't deny her determination to continue working, but she does not have ME and her attitude to my illness has no doubt been coloured by some of the disinformation of the psychiatric approach.
It's the first time I've had this from a good friend and although we won't fall out over it, I am a bit upset by the attitude.....
The Norwegian gov have apparently now apologised to their ME patients for the years of inappropriate advice and treatment.
Just this morning a work colleague told me I needed to push myself more in order to get well - because this is what she does on a daily basis. She has health issues too and I don't deny her determination to continue working, but she does not have ME and her attitude to my illness has no doubt been coloured by some of the disinformation of the psychiatric approach.
It's the first time I've had this from a good friend and although we won't fall out over it, I am a bit upset by the attitude.....
The Norwegian gov have apparently now apologised to their ME patients for the years of inappropriate advice and treatment.
Don't be afraid to try unconventional cures to illness that has a physical and mental component. My son suffered from panic attacks in random places - he's a big, bright, out-going lad. Stable relationship, good job, wide circle of friends, yet sometimes he just got this attack that made him want to leave a shop or pub immediately.
You'd think it was squarely a mental issue, but after joining an on-line support group he learned that many people were finding that a huge dose of B vitamins were preventing the problem. He bought himself a supply of Berocca and the symptoms went away.
Did the B vitamins cure it ? Or is it the thought that they will that did it ?
Who knows, but it worked and still does.
Best of luck.
You'd think it was squarely a mental issue, but after joining an on-line support group he learned that many people were finding that a huge dose of B vitamins were preventing the problem. He bought himself a supply of Berocca and the symptoms went away.
Did the B vitamins cure it ? Or is it the thought that they will that did it ?
Who knows, but it worked and still does.
Best of luck.
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SleeperService
- Posts: 1104
- Joined: 02 May 2011, 23:35
- Location: Nottingham UK
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Little John
I left teaching a year ago after being a HoD for a number of years as it was ruining my health Keela. I have worked as a landscape gardener since then but will need to work supply in the winter months when the gardening trade runs down. I've just signed back up with my old supply agency and it looks like they have lined me up for a term and a half in a PRU, I'm not looking forward to it either. But, I can live with it because I can see the exit door before I even start.Keela wrote:Thank you SS...
I am working on diet, pacing and vitamin and mineral supplements at the mo. But only just managing to stay in a holding pattern...
I'm trying to take a "zen" type attitude to it... but sometimes that is tough... REally not looking forward to kids going back to school...
At least, that's the theory.....
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Snail
my friend has cfs. he says the worst part is the brain fog. For eg, sometimes trying to speak and not being able to get the words out. Or sometimes the wrong word pops out. Sounds strange as it seems to affect his speech more than written work. He blames his cfs on anti-biotics he was given as a teenager.
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featherstick
- Posts: 1324
- Joined: 05 Mar 2010, 14:40
I picked up a booklet about ME and Osteopathy in the European School of Osteopathy in Maidstone many years ago, and passed it to a friend who was a sufferer. She was subsequently very grateful, almost to tears, as the osteopathy had helped enormously. Might be worth pursuing.
"Tea's a good drink - keeps you going"
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hardworkinghippy
- Posts: 568
- Joined: 16 Aug 2007, 02:03
- Location: Bergerac France
- Contact:
Keela,
I've signed the petition and I wish you the very, very best and I hope you find a way out of this soon.
I have two people in my life who have had ME - one a cousin, a very hard working young doctor and another - again - an over achiever if there ever was one.
Take it easy and take each day as it comes.
All my love, Irene x
I've signed the petition and I wish you the very, very best and I hope you find a way out of this soon.
I have two people in my life who have had ME - one a cousin, a very hard working young doctor and another - again - an over achiever if there ever was one.
Take it easy and take each day as it comes.
All my love, Irene x
Our blah blah blah blog is HERE
Thank you for all these messages of support... it helps.
Up until now very few people knew I was off long term, now it's filtering out to friends further afield. Most reactions are very supportive.
I'll think about the oesteopathy, although I already see a chiropractor anyway. Some of the most recent research is suggesting mitochondrial disfunction....
And the speech thing affects me quite badly on my bad days. Today has been good and I've just had lunch out with an old friend....
Admittedly part of me is relieved not to be going back to teach this term, but an empty house will produce other new challenges.... I'm starting making a few plans already to keep myself chirpy!
Up until now very few people knew I was off long term, now it's filtering out to friends further afield. Most reactions are very supportive.
I'll think about the oesteopathy, although I already see a chiropractor anyway. Some of the most recent research is suggesting mitochondrial disfunction....
And the speech thing affects me quite badly on my bad days. Today has been good and I've just had lunch out with an old friend....
Admittedly part of me is relieved not to be going back to teach this term, but an empty house will produce other new challenges.... I'm starting making a few plans already to keep myself chirpy!
Quick bump in case any of you missed this and would like to sign the petition:
http://epetitions.direct.gov.uk/petitions/37117
"Advisors to the government on ME (commonly referred to as CFS) should be ME experts, not psychiatrists"
Apparently Obama has promised more help to CFS sufferers in USA! Yay!
http://epetitions.direct.gov.uk/petitions/37117
"Advisors to the government on ME (commonly referred to as CFS) should be ME experts, not psychiatrists"
Apparently Obama has promised more help to CFS sufferers in USA! Yay!
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raspberry-blower
- Posts: 1868
- Joined: 14 Mar 2009, 11:26
Have signed Keela - and good luck in your fight against ME.
I have known a work colleague, many years ago, who suffered from ME. She was told by the doctors then that she was putting it on although she clearly wasn't. I worked with her before and after the disease took hold and she was not the type of person to put something like that on.
Actually, in my current role, I have a work colleague who has been seriously affected by mercury almagam poisoning. He has had a gut inflamation caused by flora overstimulation in his intestines (I think I've got that right) and has caused him to be off work. When he came back to work he looked like death not particularly warmed up - poor guy.
The NHS said that he was putting it on (sound familar?) and has changed his diet so as to avoid all the foods that cause him distress.
I have known a work colleague, many years ago, who suffered from ME. She was told by the doctors then that she was putting it on although she clearly wasn't. I worked with her before and after the disease took hold and she was not the type of person to put something like that on.
Actually, in my current role, I have a work colleague who has been seriously affected by mercury almagam poisoning. He has had a gut inflamation caused by flora overstimulation in his intestines (I think I've got that right) and has caused him to be off work. When he came back to work he looked like death not particularly warmed up - poor guy.
The NHS said that he was putting it on (sound familar?) and has changed his diet so as to avoid all the foods that cause him distress.
A common mistake that people make when trying to design something completely foolproof is to underestimate the ingenuity of complete fools - Douglas Adams.
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SleeperService
- Posts: 1104
- Joined: 02 May 2011, 23:35
- Location: Nottingham UK
I'd sign it for you but I don't think they'd pay any attention to an Irish address. That is awful though. This crap of attributing psychiatric causes to physical complaints isn't limited to ME if it makes you feel any better. I had one idiot doctor tell me that my horrendous period pains were because I 'think too much' and another (while ingeniously managing to misdiagnose severe antibiotic induced thrush as genital warts - sorry for the TMI!) who told me that I had it because I 'lived too much in my head'. Seriously. Then there was the one who explained away my pregnancy exhaustion the minute she heard I was a solicitor - I must be working too hard and I needed to 'take it easy' and, of course, do flipping yoga. Didn't bother to ask if my job was actually stressful or not (in fact it's completely chilled out). Nothing to do with being pregnant, anaemic and having low blood pressure, oh no....
It's some kind of weird hangover from Freud as far as I can see. It's mostly women who have to listen to this kind of horseshit. And god help you if you're dressed in a suit and come across as well educated - you're clearly a little Miss Type A personality who needs to get back in touch with her body and her sweet and mellow feminine side. They might as well just bring back the old Hysteria diagnosis and be done with it. 'Stress' has just taken over as the catch-all cause for everything they don't understand. And of course the cure is then conveniently vague and the sole responsibility of the patient. If you don't get better despite the yoga, meditation and breathing exercises, well you're clearly just a stressball who needs to try harder.
The medical profession can be a bunch of patronising muppets. Frequently in my experience. Especially when they haven't a bloody clue what's wrong with you or why but couldn't possibly just get over their egos and admit that. And if you get riled up by being patronised you're clearly demonstrating your overly highly strung nature. I think I understand something of how a mentally well person could end up trapped in a mental hospital...
Anyway I hope you get well soon and don't let them get to you!
It's some kind of weird hangover from Freud as far as I can see. It's mostly women who have to listen to this kind of horseshit. And god help you if you're dressed in a suit and come across as well educated - you're clearly a little Miss Type A personality who needs to get back in touch with her body and her sweet and mellow feminine side. They might as well just bring back the old Hysteria diagnosis and be done with it. 'Stress' has just taken over as the catch-all cause for everything they don't understand. And of course the cure is then conveniently vague and the sole responsibility of the patient. If you don't get better despite the yoga, meditation and breathing exercises, well you're clearly just a stressball who needs to try harder.
The medical profession can be a bunch of patronising muppets. Frequently in my experience. Especially when they haven't a bloody clue what's wrong with you or why but couldn't possibly just get over their egos and admit that. And if you get riled up by being patronised you're clearly demonstrating your overly highly strung nature. I think I understand something of how a mentally well person could end up trapped in a mental hospital...
Anyway I hope you get well soon and don't let them get to you!
Thanks for posting Keela and wishing you a speedy recovery. I've signed the petition and retweeted it.
If you think it is something that is to do with mitochondria it may be worth checking to see if you have a MS therapy centre near you (not the MS society), the MS therapy centres provide alt. therapies including hyperbaric oxygen chamber therapy and can be useful in MS which is also a disorder of the mitochondria.
If you think it is something that is to do with mitochondria it may be worth checking to see if you have a MS therapy centre near you (not the MS society), the MS therapy centres provide alt. therapies including hyperbaric oxygen chamber therapy and can be useful in MS which is also a disorder of the mitochondria.
Power concedes nothing without a demand. It never did and it never will. Frederick Douglass